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My wife was diagnosed with Graves and TED about 18 months ago. She is 75, so that is older than usual? Are there others out there?

A TEDhealthteam Member asked a question 💭
Bozeman, MTV

She has undifferentiated connective tissue disease with Hashimoto's, with Sjogrens's and some SLE symptoms. She started Tepezza and by the third dose had significant hearing problems. Her Dr. told her to stop, but after 6 months of degradation in her situation, decided said it was the only real choice. So, she is back on Tepezza, and not only is she having worsening hearing, she is seeing little change in her double vision, pain, watering, eyelid drooping and so on. The only thing that has… read more

July 6, 2025
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TEDhealthteam

While TED is most commonly diagnosed in people between their 40s and 60s, it can occur at any age. For women specifically, there are two peak age ranges: 40-44 and 60-64 years. It's worth noting that older adults may experience more severe TED symptoms compared to younger individuals. Regarding treatment options, Tepezza is Show Full Answer

While TED is most commonly diagnosed in people between their 40s and 60s, it can occur at any age. For women specifically, there are two peak age ranges: 40-44 and 60-64 years. It's worth noting that older adults may experience more severe TED symptoms compared to younger individuals. Regarding treatment options, Tepezza is one of several available treatments for TED. Other treatment options may include:

- Corticosteroids to reduce immune system activity
- Surgery to prevent vision loss
- Lifestyle modifications, particularly if smoking is a factor

If you're concerned about the side effects and limited improvement with Tepezza, it's important to discuss these concerns with your wife's healthcare team. They may need to reassess her treatment plan or consider alternative approaches based on her specific situation and symptoms.

July 6, 2025

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what are your experiences re: side effects from the tepezza infusions?

A TEDhealthteam Member asked a question 💭
Tucson, AZ
November 9, 2024

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