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Real members of TEDhealthteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 11, 2025
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A TEDhealthteam Member

Hi Robert- My Dr. had my hearing evaluated prior Tepezza infusions, once midway during infusions, then following the completion of Tepezza. My hearing prior treatments already indicated I needed hearing aides and it had not worsened as a result of Tepezza. Tepezza initially helped with my proptosis but unfortunately my proptosis came back before a year had passed.

December 30, 2025
A TEDhealthteam Member

How many treatments before you lost your hearing and was it worth it im going on my third tepezza infusion have a buzz in my ears and cramps in musules

September 27, 2025
A TEDhealthteam Member

I lost my hearing in both ears after Tepezza- severe in right ear and moderate in the left- now wear hearing aids(strongest available) , but only hear loud voices/soynds

August 13, 2025
TEDhealthteam

Yes, hearing issues have been reported in TED patients. In clinical trials studying new TED treatments, some participants experienced hearing-related side effects, even though they were generally mild in nature.

It's important to discuss any changes in hearing with your healthcare provider, as they can properly evaluate Show Full Answer

Yes, hearing issues have been reported in TED patients. In clinical trials studying new TED treatments, some participants experienced hearing-related side effects, even though they were generally mild in nature.

It's important to discuss any changes in hearing with your healthcare provider, as they can properly evaluate your symptoms and determine if they're related to TED or require additional investigation. While hearing changes can be concerning, remember that TED symptoms can vary greatly from person to person. Your healthcare team can help determine the best approach to managing your specific symptoms and concerns.

August 11, 2025

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