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I visited 3 doctors here and all of them recommended Tepezza , which after the treatment I’ll need surgery (!?) I do not want Tepezza .

March 27, 2025
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Thyroid Eye Disease Surgery: 5 Facts To Know Read Article...
A TEDhealthteam Member

I did do Tepezza, it was one of the only treatments that actually reduced the bulging and blocked tissues from swelling. I did have hair loss, and some hearing loss with the infusions. My hearing is almost back to normal now and my hair did grow back. I didn’t experience anything else. It was also not curative. It just reduces the bulging of the eye and tissue swelling/ptosis. The docs wanted to reduce swelling/inflammation as much as possible before surgical options were considered. Look for an oculiplastic surgeon or an ophthalmologist that has done many of these surgeries. Worth it!

May 11, 2025
A TEDhealthteam Member

10 years ago I had the same problem on my left eye. I got surgery, it was great and back to work in 1 week without side effects. Tepezza has a lot of side effects, that is just one reason why I didn’t wanted.

May 10, 2025
A TEDhealthteam Member

May I ask why you don’t want Tepezza infusions? Just curious.

April 13, 2025
TEDhealthteam

For TED surgery, you'll want to specifically look for oculoplastic surgeons and strabismus surgeons who specialize in treating thyroid eye disease. Oculoplastic surgeons focus on surgery around and behind the eyes, including soft tissue and eyelids, while strabismus surgeons handle eye muscle surgery if needed for double Show Full Answer

For TED surgery, you'll want to specifically look for oculoplastic surgeons and strabismus surgeons who specialize in treating thyroid eye disease. Oculoplastic surgeons focus on surgery around and behind the eyes, including soft tissue and eyelids, while strabismus surgeons handle eye muscle surgery if needed for double vision.

The main surgical options available include orbital decompression (to reduce eye bulging), eye muscle surgery (for double vision), and eyelid surgery (to help with eyelid positioning and appearance). Before proceeding with surgery, it's important to understand the potential risks. These can include vision loss, double vision, bleeding around the eye, infections, and other complications depending on the specific procedure. The best approach is to seek care at research medical centers or academic hospitals that have specialized TED clinics.

Consider using online resources like the American Academy of Ophthalmology's doctor finder or your insurance company's directory to locate qualified surgeons in the Houston/San Antonio area who have extensive experience with TED surgeries.

March 27, 2025
A TEDhealthteam Member

Thank you. This is helpful to know.

April 2, 2025

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